Let’s change our narrative about Pain — what it is, what it means and how to treat it better. ‘Pain Talks’ is a collection of stories of resilience, support and the resources to fill in the blanks on the subject of hurting and health care.
The Pain Toolkit is for people who live with persistent pain and Healthcare teams who support them.
A nonprofit that provides advocacy and education for pelvic pain disorders.
The Explain Pain Handbook brings the latest in pain science into an easily accessible book for patients and introduces the ‘Protectometer’ – a ground breaking pain treatment tool.
Retrain Pain was founded by three New York based physical therapists (Elan Schneider, Rob DiLillo, and Greg Hullstrung), who teamed up to build an organization devoted to free online pain education.
Live Plan Be is a free online self-management tool for people living with chronic pain. The name is a play on the concept of “Plan B” — the alternative we turn to when life doesn’t turn out as planned. It was created by Pain BC in partnership with people living with pain and healthcare providers.
This site, which was recommended to me, has valuable resources on Pain Care and Treatment Recommendations: http://www.paincare.org
The magazine PainPathways has some of the most valuable content in regards to Pain Management I’ve ever come across. The publication is put out quarterly, you can get a subscription by visiting their site or the U.S. Pain Foundation site. Pain Pathway’s website also has tons of resources and articles you can browse through. For a pain patient I feel it’s a must have in your life. Visit their site at https://www.painpathways.org
The U.S. Pain Foundation site, which also has a large amount of resources, can be visited via this link: https://www.uspainfoundation.org/resources-2/ I’m directing you right to their resources page, they have a load of different resource topics such as: Community Support, Veteran Resources, Caregiver Support, Suicide Resources/Help, etc… Definitely check out their page
A workbook that I highly recommend checking out is “A Mindful-Based Stress Reduction Workbook”. As you work through A Mindfulness-Based Stress Reduction Workbook, you’ll learn how to replace stress-promoting habits with mindful ones-a skill that will last a lifetime. It is a very helpful, and practical workbook, and that’s what we all want from workbooks, isn’t it? Click below to purchase on amazon.
Before you purchase, you may want to check out this short video about the book:
“We think of pain as a symptom, but there are cases where the nervous system develops feedback loops and pain becomes a terrifying disease in itself. Starting with the story of a girl whose sprained wrist turned into a nightmare, Elliot Krane talks about the complex mystery of chronic pain, and reviews the facts we’re just learning about how it works and how to treat it.”
For more information on Elliot Krane, visit:
A little inspiration for the day!
Professors at the University of Alabama at Birmingham School of Education provided 8 tips below for decreasing stress. Stress can have many negative effects on the body such as: fatigue, headaches, upset stomach, insomnia, weight loss or gain, muscle tension, and increased blood pressure to name a few.
- Get out. Going outside for a change of scenery, and taking just a 10- to 15-minute walk can help. Research suggests that a natural environment is a de-stresser. Anything outdoors, weather permitting, is a great idea because it gets you out of your regular environment. In the event of bad weather, try yoga or basic stretching exercises.
- Take a deep breath. Stress or nerves may cause people to take shallow breaths or even hold their breath. Simple breathing exercises, like taking slow, deep breaths can help people relax and de-stress.
- Find a hobby. Having fun and doing something you enjoy is a great way to feel better and relax. Plan fun activities and enjoy hobbies or engage in interests outside of the job environment.
- Eat a healthy diet. Eating more healthy foods, particularly fruits and vegetables, may boost your immune system. A poor diet puts the body in a state of physical stress and weakens the immune system. As a result, a person can be more likely to get infections.
- Be positive. Making it a point to look on the bright side can make a big difference when it comes to stress. A person with a negative attitude will often report more stress than would someone with a positive attitude.
- Stay connected. When coping with life’s twists and turns, it’s important to rely on friends for support. Sometimes having little or no social support will increase the difficulty of dealing with an issue.
- Stretch. Stress builds up over time and can center in the neck, back and spine. Stress can cause headaches and lower the immune response. Both exercise and stretching help to relieve stress.
- Take a break. For 10 minutes every day, relax and try to shut out the world. Close your eyes and breathe deeply; this can trigger the relaxation response.
For more help on managing chronic stress, visit the American Psychological Associations website dedicated to taking action on decreasing stress: here.
For information & resources on Narcolepsy from the Division of Sleep Medicine at Harvard Medical School, click here.
Narcolepsy can make people feel as if their lives have unraveled, but with optimal treatment, the disorder is manageable, and most people can lead productive lives. Treatment usually consists of two main approaches: behavioral strategies (such as short naps to reduce sleepiness and staying active to keep alert), plus carefully chosen medications to improve alertness.
Below is a beautiful video produced by Mastin Kipp about a concept his mentor Caroline Myss shared with him. I think this video can apply to those of us with chronic pain because (I don’t know about you but…) I certainly have times when I ask myself, “Why is this happening to me”? After watching this short clip check out my notes below.
After watching I spent some time journaling about re-framing his questions into a few more powerful ones:
-What am I learning about life by having chronic pain?
-What have I already learned?
-What do I think is still out there for me to learn?
Share your thoughts on Mastin’s video and the applicability to chronic pain in the “Plugging Into Life” Facebook forum this was posted to originally, available here:
Check out more of Mastin’s work, along with others, at his site: www.thedailylove.com